Lately, I have been feeling really well! I feel like I am slowly on the road to remission. My bowels are fairly normal for the most part. I am able to eat most foods without bad symptoms. Also, I am in a slow process of weening off of one of my drugs Entocort. By the beginning of April, I should be done with that drug. And then, hopefully I can start to ween off of Pentasa. My doctor says I shouldn't need these two drugs since I am taking Cimzia, and my body is now responding well to the injection, Cimzia.
My diet is altered depending on how I am feeling. Since I have been feeling well lately, I have been incorporating some more fiber back into my diet like whole wheat breads and apples with the skin. Also, I am not as concerned about oils/butter being in my meals. I still keep the quantity of oil and butter light on my meals,but I do not completely stay away from them like when I am sick.
Being able to eat more options is less stressful for me. I am able to go to a restaurant and always find something on their menu I can eat. When I am in a flair, I usually ask the management to special make the meal without oil, butter etc.
For more information about my diet and foods that I tolerate well, please visit my past blog post, http://crohnsnewlywed.blogspot.com/2012/09/my-diet-in-nutshell.html
I'm not sure why, but my migraines have become more frequent the last month. Thankfully, I have found a migraine drug that works for me Maxalt. I am especially glad to announce that Maxalt just came out with its generic at the beginning of this year called Rizatriptan. The pharmacist at Walgreens said there are migrain prevention drugs, however this would require taking a pill on a regular basis. I'm sure I am at the point where I need to do that or have the desire to incorporate another drug into my daily medications or budget.
The start of a new year feels good to me. Although 2012 was the year I married the love of my life, it was also a very stressful year with many ups and downs. So far, 2013 has given me good health, time to relax and spend with my husband and some new opportunities at work.
I love my husband. It hasn't even been a year of marriage yet, and I feel like we have learned so much about each other. I hope that we will continue to learn more about how to love each other better this year. True love is never giving up.
Please remember to donate "Take Steps Crohns and Colitis Fundraiser" at http://online.ccfa.org/site/PageServer?pagename=TS13_participant_search
I am participating in a fundraising walk on May 4 to help raise awareness and support, and I would really appreciate yours! :)
Saturday, February 23, 2013
Monday, February 11, 2013
Crohn's Fundraising Walk May 4
I have decided to participate in the annual "Take Steps, Be Heard for Crohns and Colitis" fundraising walk on May 4 at Stars and Stripes park in Oklahoma City. I have no idea really what to expect. I hope to meet people and other families that I can relate to. I know very few people with Crohn's disease. I also hope to raise awareness and help educate others about this autoimmune disease that affects 1.4 million adults and children in the United States. It is a difficult condition for patients to talk about, because the symptoms can be so embarrassing. Most people hide that they have it, thus raising awareness of it can be a difficult task.
I also hope to help the foundation raise funds that will go directly towards local patient programs and research projects to help find a cure and improve the lives of patients. My doctor talks to me as if one day in my lifetime there will be a cure. I sure hope that is true! Sometimes I wish I had the hope and belief she has that there will be a cure in my lifetime.
About 6 months ago, I decided to become more vocal about my illness. I have become more open to talking about what I have and writing about the sometimes uncomfortable symptoms in my blog. I know talking about a digestive disease makes some people feel uncomfortable or sad, but that is not my intention. My intention is to educated others and help those around me understand what I go through.
My number one intention with this blog is to provide a platform for others with digestive diseases to relate. When I was first diagnosed, it was difficult to find articles or other people's stories on the internet to relate to. When you go through something hard, you long to relate and feel like you are not alone. By writing this blog, I want to help others throughout the world not feel alone in their struggles. My other reasons for starting this blog are to help my friends and family understand me and to keep people updated on my life as a newly wed.
If you would like to go to my team's fundraising page follow the link below. You can type in my name to search for our team "The Crohn Rangers." Please visit the page and the website to learn more about digestive diseases, and if you would like you can donate to our team as well. There is a link on our team page for donations. I would be so appreciative of your support! you can also sign up to join us on May 4th for the Walk. I would LOVE to see your face at this event!
http://online.ccfa.org/site/PageServer?pagename=TS13_participant_search
I also hope to help the foundation raise funds that will go directly towards local patient programs and research projects to help find a cure and improve the lives of patients. My doctor talks to me as if one day in my lifetime there will be a cure. I sure hope that is true! Sometimes I wish I had the hope and belief she has that there will be a cure in my lifetime.
About 6 months ago, I decided to become more vocal about my illness. I have become more open to talking about what I have and writing about the sometimes uncomfortable symptoms in my blog. I know talking about a digestive disease makes some people feel uncomfortable or sad, but that is not my intention. My intention is to educated others and help those around me understand what I go through.
My number one intention with this blog is to provide a platform for others with digestive diseases to relate. When I was first diagnosed, it was difficult to find articles or other people's stories on the internet to relate to. When you go through something hard, you long to relate and feel like you are not alone. By writing this blog, I want to help others throughout the world not feel alone in their struggles. My other reasons for starting this blog are to help my friends and family understand me and to keep people updated on my life as a newly wed.
If you would like to go to my team's fundraising page follow the link below. You can type in my name to search for our team "The Crohn Rangers." Please visit the page and the website to learn more about digestive diseases, and if you would like you can donate to our team as well. There is a link on our team page for donations. I would be so appreciative of your support! you can also sign up to join us on May 4th for the Walk. I would LOVE to see your face at this event!
http://online.ccfa.org/site/PageServer?pagename=TS13_participant_search
Subscribe to:
Posts (Atom)